May continued to be a tough month health-wise, not just for Gracie, but for all of us... bronchitis, sinusitus, etc.
No bueno. The ick did not, however, prevent us from enjoying ourselves in the spaces between! Aside from Preston's birthday, here are some of my favorite moments in May...
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May 1st
Hold the phone... Gracie has clothes on inside the house!!!!
We were headed to our community's annual festival on a beautiful, sunny day.
Love this - - even with Preston's "cheese" smile. In the one with a real smile, Gracie wasn't smiling. Figures!
(For the record, she had her shoes off and was working on her shirt by the time I got her wheelchair out!) |
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Later that day, cooling off on the back patio playing Zoodles on Mommy's phone.
Though the photo obviously doesn't capture it, Preston was explaining all kinds of games to Gracie.
They hung out like that for about 45 minutes... so sweet. |
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May 2nd
More beautiful weather made for an ideal "Mommy & Son" beach date while Gracie was at school.
I love that my little man loves the ocean as much as I do. |
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May 3rd
Both in outfits of their own choosing (she does have on a diaper, FYI!),
the kids enjoyed another warm evening playing in the backyard!
Gracie loves to go fast and Preston loves to push her! |
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May 5th
With the Jacaranda trees in full-bloom (which make me so very happy),
Preston and I spent a good part of the afternoon at the park, lunching and playing barefoot soccer.
He knows I love these trees and points them out to me anywhere he spots them. |
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| I love looking at his hands in these pictures... he is concentrating all the way through his fingertips! |
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May 14th
Day two of an eleven-day stretch of "space between" for Gracie.
This little girl makes me so happy... and never ceases to amaze me.
After a solid week of feeling awful and barely tolerating one quarter of her daily caloric need,
she wanted up so she could cruise the kitchen and "cook" with mommy.
Since "cook" is a two-handed sign, it was interesting watching her motor-plan
to execute the sign while maintaining balance.
The solution: forehead on the counter to stabilize herself while signing. |
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May 21st
They were hanging out... and as I started to take a picture of their cuteness, Gracie took a pretty decent tug on Preston's hair... not with the intent of hurting him, of course, but it did. |
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Preston sweetly explaining to Gracie that she has to be gentle.
Ha! Pot... meet Kettle!! |
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May 22nd
Miss Gracie likes herself some tight, confined spaces. And, while she loves playing on the trampoline, on this day, she played under it for hours, literally. We kept getting her out and she kept going back. She was obviously seeking that type of environment, so we let her stay, knowing that she is fully aware of what her body needs. Every once in a while, Preston would exchange her toys, but other than that, she played alone and was happy as can be, and happy is the whole point, isn't it? |
3 comments:
Hi Miss Gracie
My name is Jenna and I came across your site. U are an amazing, courageous, strong and determined fighter. U are a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and love it when people sign my guestbook. www.miraclecham[.webs.com
Oh my gosh, I loooove these photos! I was rolling at the Pot ...meet Kettle one. Preston! He's so funny. And Gracie zooming around in that car, looking naked, with P pushing her ...sooooo fun! You capture these moments and describe them so perfectly. What a hug to my heart. Thanks for posting. Thanks for being you. I miss you so much ...even moreso when hearing Gracie is sick again, and seeing these photos. :( Huge hugs from me and all the Morazzini's and Volzes ...we love you so, so much. Barecca J
The jacaranda trees just started blooming here last week! Almost two months late after a downright wintery spring! (i love jacaranda trees too- they make me think of mt grandma Viv and Mexico, two of my favorite things.)Anyhow, seeing the bright purple blooms made me think of this post - and I wondered if I had properly commented! I haven't, so - I love these May moments. My favorites are Gracie being pushed by Preston in the car and you and P at the sunshiney beach!
I know you are on the throes of some tough days with our beloved Miss Gracie. Sending her all my love. Hoping for the wind to be blowing through her hair as she's pushed in the car by Preston oh-so-soon. xo
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