Showing posts with label Recollections and Reflections. Show all posts
Showing posts with label Recollections and Reflections. Show all posts

Thursday, February 14, 2013

My Funny Valentines

Miss Gracie... rocking one of many heart shirts this week!
Preston, busting out his Valentines for his classmates on Sunday night.
 
Our littlest Valentine wearing the same bib his big brother sported five years ago!
Can you say ham?!
The Valentine gifts the kids gave to their teachers/aide/nurse

And because it's always fun to walk down memory lane...
An oldie but goodie... I never tire of looking at this picture of Miss Gracie.
Their bond... so special... so instant.
I am so thankful that Gavin loves his sister this much, too!
So sweet!  I love Preston attacking Gracie... big 'ole bear hug!

Thursday, December 15, 2011

Meet "Tree-na"


December 2002 - 5 months pregnant with Gracie
This is "Tree-na," aptly named as "her body" is a small, artificial Christmas Tree. 
Where did she come from, you ask?  Well, that would be courtesy of my very creative husband!   Treena was born from a fun contest that was being held at my work Christmas party.  Each staff member received a small, artificial tree and had to decorate it and bring it to our party.  We were free to do anything with the tree... and people did.  There were some amazingly innovative ideas displayed that night, but none (at least in my opinion) as sweet and creative as John's work "birthing" Treena!

I had done nothing with my tree... nothing.  The morning of the party, I asked him (since he was off work that day), if he'd grab some decorations and make something somewhat respectable of the tree so that I could save face at work.  I got home with barely enough time to change, pick John up and head out to the party.  What I found, sitting on the kitchen counter all ready to go, was this amazing "tree" turned baby - - diapered, bibbed, wearing scratch mittens and booties sitting in her cozy, blanket-lined basket... and complete with working lights! 

And, yes... my husband ROCKS!


This is the third Christmas (2002, 2006 and now) that Treena has been a part of our holiday decor. 
It will be a little bittersweet to put her away this year, knowing that she'll likely never be out again
(at least not because I am pregnant!).

Friday, October 7, 2011

20 weeks... and trying to keep my nerves in check


I am officially 20 weeks pregnant. 
And, yes, I am sure there is only one baby in there!  :-)

With the exception of a scary episode of dehydration following a nasty allergy/asthma/hive attack (ironically on the evening we went "public" with our baby news), things have been going swimmingly.   I was in constant contact with my doctor (who was so great and even about to drive over to our house when I couldn't reach John at work) the night it happened and continued to be through the weekend until I saw her again.  She took a good look at me and the baby and determined that things still look great.  We even saw our little Tiebreaker wave at us on the screen and my doctor printed it a picture and wrote, "Hi, I'm good!"

Up until the last five days, I had been pretty easy going... not too hormonal (aka emotional or irrational) and not in too much discomfort.  In fact, I'm too busy day-to-day to really remember that I'm pregnant (other than running to the bathroom a lot, needing to eat more often and not being able to bend over quite as easily), that is, until the end of the day when I am absolutely zonked from going non-stop for 18 hours straight!  Easy going... until Monday. 

I was a tightly wound on Monday.  (My heartburn also kicked in with a vengeance... even water is bothering me... but that's really not the point here.)  I was like a ticking time-bomb... looking at me wrong could have been the end of you!  Going through the busy day helped keep me in check a bit, but by late afternoon, I couldn't even have the radio on in the car on the way home from Gracie's therapy.  Too many chances to hear a song that would set off the waterworks.   Then, as if the universe knew I needed an intervention of sorts, we came home to find a very special piece of mail with a gift and note from a dear friend who, as usual, has the perfect timing, the perfect heart, and the perfect piece of wisdom to give me some perspective.  It took until Tuesday night for the perspective to fully sink in... it wasn't so much my raging hormones causing the emotional and (perhaps, irrational!) behavior, as it was my nerves.

John and I are both incredibly nervous for "the big ultrasound" next week... and the fetal echo cardiogram two weeks later.  And it's justified.  It's not just about Gracie's history... because we know that CHARGE Syndrome recurrences are rare - - about 1-2%.  It's about the 2-3% chance that anything can go wrong.  It's the knowledge that Congenital Heart Defects are so much more prevalent than the general public realizes.  It's about knowing way more than parents should have to about genetics, fetal development and statistics. 

It's also because Preston's "big ultrasound" was a disaster.  Over an hour on the table with the tech going back and forth over the baby's anatomy and trying to pretend she wasn't focused on the heart.  John finally told her, "Look, we can clearly see where you're focused, will you please tell us what's going on."  She said she was being thorough and would show everything to the perinatologist, who would then come in, too.  A few minutes later, the doctor came in and started scanning, again focusing on the baby's heart.  It was then that our world temporarily shifted.  She said she was 93% certain (yes... she used that specific of a number... so entirely unprofessional) the baby had a major heart defect.  (Our fetal echo wasn't scheduled for two more weeks.)  With a colorless face, John took my hand and assured me he wasn't leaving me, but that he needed to leave the room for a moment and get some air.  The doctor looked at me, wondering if he really was coming back.  I reminded her that, just the day before, we had brought our daughter home from the hospital following her third open heart surgery.   Of course my husband needed a moment.  He came back... with a bit more color in his cheeks... wearing a grim-trying-to-pretend-to-be-calm expression.  

Because of her certainty, we chose to do an amnio right on the spot... it had not been our intention to take that risk unless justified.  Because we wanted to focus on something other than what might be wrong, we also chose to immediately find out the baby's gender.  (I had wanted to wait this time.)  We didn't need the amnio for that... our little man was proudly spreading his legs and showing off his parts.   As I laid on the table while watching them do the amnio, John and I were reeling.  We had only brought Gracie home from her third open heart surgery yesterday.  How could this be happening?

Thankfully, our cardiology group didn't want us to wait the two weeks until our appointment.  But, being that it was only a few days before Christmas, there wasn't anything on the schedule and some of the docs were on vacation.  The next day, our wonderful cardiologist called us and asked if we could meet him in the office at 8am before he left for the airport... otherwise, we'd have to wait until after the New Year.  It was, obviously, a no-brainer.  His kindness and compassion during a terrifying time will never be forgotten.  He was still in town, but his vacation had already started the day before.  He didn't have to see us... but he did. 

Needless to say, neither of us had slept much since the ultrasound.  Waiting for 8am felt like an eternity and it was the longest appointment ever.  He was so thorough and agonizingly quiet.  Finally, he explained what he saw... he explained what he think the tech and perinatologist saw... and he explained that they were, in fact, wrong.  There were a couple of things he wanted to monitor over the next couple of months, but he also very pointedly said that our baby boy's heart looked normal for the current stage of development.  (John wanted to rip apart the perinatologist for her lack of professionalism... as did my OB, as did our cardiologist, as did everyone... even my new OB.  The perinatologist never should have put a number on her suspicion.  She never should have gone that far... rather, she should have told us her concerns and contacted our cardiologist.  Then we could have decided how to proceed.)   Needless to say, the news was a huge relief.  But, I never fully exhaled for the rest of my pregnancy.  Until Preston was in my arms and his first echo was complete, I never truly felt sure that he was okay. 

So... our nerves are justified.   All of that stewing in the back of my mind is how I got so tightly wound.  But, we (okay, more me than John... but, still, we)  need to pull it together and focus on all of the positive things instead of the what-ifs.   If there is one thing that we know, it's how many positives there are - - even in the smallest of things - - regardless of the "what-ifs" and what actually "is."  Our daughter, and all she teaches us, is a constant reminder of that.

Still, I will be glad when October 11th and October 28th are behind us.

Friday, March 18, 2011

Nose prints on our backdoor

Today I cleaned your nose prints off the backdoor... for the last time.  I've been avoiding it.  I knew I would cry, but I had no idea how hard.   For years, when I'd cry and no one else was home, you'd come find me, we'd curl up and you would let me cry on you until your silky soft ears were soaked with my tears.   Today, crying for you instead of next to you, only added to the difficulty of cleaning the backdoor and was a painful reminder of the last teardrops I shed on your ears just three weeks ago.
We said goodbye to you in the dark, early morning hours of February 24th and I have been putting off (what once was a several-times weekly task) every single day since then.  We all miss you terribly, Sophie, and there really aren't words to describe the profound void  that now exists.  We knew our days with you were passing quickly, but, no matter how much we prepared ourselves, there was no preparing.

Preston talks about you, without our prompting, every single day, telling us how much he misses playing with you, how pretty you are and how sad he is that he doesn't see you.  The other night, he "wrote" you a note and asked us to send it to you in Heaven.  He has also drawn pictures for you that we need to "keep in a safe place until you come back from Heaven."  Last night at dinner, he toasted to you and said, "For Sophie in Heaven.  I miss my dog.  Cheers." 

Gracie misses you so much, too, which goes without saying. After all, the two of you shared a bond that was undeniably special and daddy and I were privileged to witness moments between you that were absolutely breathtaking.  
Although you spent every night "making rounds" to each room where we were all sleeping, you spent your last few mostly in Gracie's room.  On that last night, you slept on the floor at the foot of her bed... never leaving her room.  Thankfully, she and Preston were asleep when you woke me up and they remained asleep when Daddy carried you to my car.  However, you most certainly came and said your own special goodbye to Gracie later that morning when she went looking for you before school.  It was a sacred moment that left both daddy and I in tears and one which we won't ever forget.  Thank you for that priceless gift and countless others.

Every part of our daily routine included you... chores, playtime, leaving, coming home... everything.  I still feel your body up against the back of my legs and turn to look for you.  I still hear your chain shake when you get up at night needing to be let out.  I still hear you at the back door, giving one quick little bark to remind someone that you're done and want to come back inside.  I still step over and around where you'd lie in our bedroom, my instincts and habits do not coincide with the reality that you're not there.  I still look for you to greet us at the gate when we drive up.  I still wait for you to come lay at my feet when I sit at the computer.  Missing you and seeing the kids miss you is so painful, but it is also a testament to the love and bond that we shared with you for twelve years and ten days... and thinking of that is joyful.

It was 1999, we had just bought our first home and I wasn't moving in until after we got married.  Our wedding was four months away and, after saving for almost two years, we were taking a much anticipated, extended honeymoon to Europe.  Suffice it to say that getting a pet and then leaving that pet for six weeks wasn't on our radar.

But, all that changed while my mom and I were running some wedding errands in downtown Walnut Creek.  The Contra Costa Humane Society had opened an adoption center in a store that had just gone out of business.  There were cats in the front windows... they were so cute... so I wanted to walk inside, much to my mom's chagrin... we were, after all, trying to get things done.  We went separate directions as we walked in and I was making friends with a cat when she came up behind me and told me to come in the back.  "You have got to see this dog." 

I followed my mom into the back and there you sat.  You were clearly uncomfortable in your surroundings, but no amount of discomfort could hide the most soulful, beautiful, perfectly lined eyes.  You had the sweetest face... you were quiet, gentle, regal looking - - even with a red bandanna around your neck. (I'm quite certain that no other dog could sport a bandanna and still manage to look regal!)  It was obvious that you had easily bonded with Beth, the woman at the Humane Society who had been taking care of you, and her presence put you at ease as more and more people started walking in, several of whom were interested in taking you home.  Thankfully, my mom and I had also bonded a bit with Beth and she put us at the top of the list for potential adoptive homes for you (I hadn't even called Daddy yet!).  I explained that we were getting married soon and that we would be leaving for a long honeymoon... wondering if that would be an immediate deterrent from them letting us adopt you.  I knew that my family would take care of you in our absence, but wondered how our absence in just a few months would affect you.  She wasn't too concerned. 

She told us what they knew about you... which wasn't much.  You were about a year and a half or two... though you looked much younger (you looked young even as a senior dog... wish we all could age as gracefully as you did!).   You were a German Shepherd mix... they assumed a Greyhound breed (later agreed on by vets as a German Shepherd and Sloughie mix).  You had already been spayed (which was so sad to us, as you would have made a wonderful doggie mommy and had the cutest puppies ever!).  They had given you the name "Simone" which was problematic, as it didn't suit you in the least.  You were found wandering around town by animal control, underweight, with no collar.  You were taken to the pound and put on a 24-hour list - - that meant that if you weren't adopted/rescued within 24 hours, you would have been put to sleep.  The pound was overcrowded and thought you were too anti-social... what they didn't realize was that you were simply terrified and likely, depressed.  Oh, and, of course, the Shepherd in you was certainly not warm and fuzzy with strangers who hadn't earned your trust... neither was the Sloughie part of you, for that matter.  Thankfully, a Humane Society volunteer went to that pound on that day and rescued you.  I'm so grateful... because (regardless of who adopted you) you deserved a chance at life... and I was in love.  So was my mom... it was impossible not to be.  I stepped outside to call Daddy and he was perplexed about my sudden interest in a pet... after all, this didn't make much sense.  But, I knew that he just needed to meet you...

I brought him back that same night.  You were really nervous to meet him (because they gave us privacy and moved us into a small, empty room and you were terrified), but won him over nevertheless.  We spent our evening at dinner discussing you and how you'd fit into our lives and, by dessert, we knew we were going to adopt you for sure.  The next day was Valentine's day - - and became known as your "Re-Birthday."  We bought you a bed, collar, leash, food, a few toys and headed out to get you.  You were quiet on the drive home, looking out the rear window of the car, presumably for Beth, but you really adjusted quickly when you were introduced to your new digs!  Though we toyed with a name symbolic to Valentine's Day, it was quickly decided that we'd call you Sophie and you easily adjusted  to that, too... along with the numerous nicknames you accumulated over the next 12 years and 10 days.  The most used name was "Moomer" which came about because, as we discovered in the first few days that you joined our family, you made a soft "mooing" sound when content.  It was the cutest sound... similar to a cat purring... and we loved hearing it.

Looking regal in 2008 while sunbathing in one of your favorite spots in our Roseville backyard
You were such a good girl... most of the time.  You had a few moments of mischief early on... you ate my brother's tuxedo shoes the night before our wedding.  (No one told me until a couple of days after the wedding!)  You destroyed a few pillows in the first few months.  In the first few weeks, we thought you were going to jump through the front window anytime someone walked through our front gate.  You tried jumping the fence in our backyard... not in an effort to escape, but rather to get the squirrels who quickly learned taunting you was not the smartest idea.  You were fast.  You would dig a bit here and there, but we broke you of that pretty easily.  You did, however, insist on burying every rawhide bone that you could sneak by us and get outside.  We quickly learned that rawhide was not the best treat for you! 

We constantly wondered what your story was... whomever had you before had clearly taken time to housebreak you.  You also knew how to sit, shake and stay (most of the time).  You were smart as a whip and with just a bit of effort and time, Daddy (I helped, too!) added speaking, howling, smiling, rolling over and dancing to your repertoire.  You understood so many words that we actually had to spell "walk" "park" "car" "bath" and several others because you'd go absolutely nuts if you thought any of those things were happening and we weren't moving fast enough! 

In our first house, the local pet store was within walking distance and they had a dog wash facility that you loved.  We used to walk you there all the time for baths and when you were done, we'd buy you a pig's ear and you'd carry it in your mouth all the way home... you'd even sit patiently with it in your mouth at the crosswalks.   And you LOVED to go on walks... long ones, two of them almost every day.  One of my favorite days ever was walking for hours in the rain with you and Daddy.  If I remember correctly, we walked over seven miles that day... just aimlessly wandering through neighborhoods in the drizzle that turned to rain.  Until we left the Bay Area, your most favorite place to go was Point Isabel's Dog Park.  You'd literally start this crazy, excited whining in the car the minute that we could see the exit on the freeway.  We felt so guilty when we moved away and there wasn't anything off-leash even remotely comparable to "your Disneyland."

Such a cuddle bug... you never did get the memo about not actually being a lap dog! 
Just looking at this, I can hear you "mooing."

You loved it when we ordered Chinese food... it meant white rice and fortune cookies for you!
You loved the beach, snow, camping (you slept right between us in our tent!)... anything that meant you were coming with us.
You used to love chasing daddy... he'd take off running, I'd make you wait, let you off the leash and you'd go off like a rocket, full-speed, catch and pass him.  Other times, you'd gently nip at his shorts as you'd pass him by... sort of like you were trying to pants him.  I loved this because it made him giggle like a kid.
You also loved chasing squirrels.  When we moved from Pleasant Hill to Roseville, we didn't have any squirrels, so daddy started calling the cats in the neighborhood squirrels.  You lunged at every cat you saw after that.  Funny... sort of.  When we moved to this house, you got your squirrels back and that made us both happy.
You had a love-hate relationship with the flies that would come in the house.  You hated it when they bugged you, but you loved it when daddy would say, "Get the bug, Sophie!  Get the bug!"  You'd hop around until you'd snap it up, that is, if daddy (aka... Mr. Miyagi) hadn't already snagged it ninja-style.  This was a game that the two of you would play while I would be rolling my eyes at you both, laughing and, of course, making sure lamps and such weren't flying around the room. 
You, I'm quite certain, dreaded Easter because I made you wear ears every year... but you did it because you knew it was our tradition and it made me happy.
You loved staring at fires in the fireplace, especially at Nana's.  You also loved napping in front of the fire.  Smart girl.
You could hear a can of whipped cream opening from across the house.  It was truly like a party trick.  Daddy would say, "Watch this..." and open the whipped cream and just barely start to hit the nozzle... you'd come running, even if you were sound asleep.  Hilarious.  And, again, smart girl.

You had battles with your health... tumors... multiple... that led to multiple surgeries over a year and a half period.  You even were followed by a nuclear medicine veterinarian for about a year.  During that time, you also decided to get into the trash and eat an entire bag of frozen chicken wings - - bones and all.  Despite multiple ultrasounds expecting devastating intestinal damage, you were fine.  Oddly enough, your health issues resolved right about the time that Gracie came home from the NICU.    It seemed silly after the fact, but when I was pregnant with her, we were worried about how you'd react, whether you'd be jealous, etc.  You had so much love to give and, truth be told, you seemed to know when I was pregnant before we did... both times... so our worries were unfounded.  
Hanging out just a few days before my
due date with Gracie
You were so protective of me and would often lay with your head on my belly, especially when I was pregnant with Gracie (since I had more time to just lie around then!).   To help introduce you to Gracie's scent, we brought home swaddling blankets from the NICU and put them next to your bed.  You knew things were changing... we weren't home a lot for a while... and when we were, we were often sad.  You were such a rock for us... loyal, lending your body as a pillow and catching our tears.  When Gracie finally came home, you were so gentle and patient... and that never, ever changed with regard to her.   Though she would reach out to quickly touch you, she didn't voluntarily start petting you (due to sensory issues) until she was about four.   But, she didn't need to pet you to bond - - she would stare at you and lay next to you for hours.  You'd let her do just about anything... things you wouldn't have ever let Preston (or anyone else) get away with... including pulling the fine fur between your paw pads!  You sensed so much about her and she about you.   You played well with Preston, and considering how old you were, you put up with a lot from him.  One thing was certain about you and your relationship with the kids... they were "your kids" and you protected them fiercely.  And even though we never considered you to be "in the background" of our lives, you are in the background of so many of the pictures... observing, lovingly standing guard and making sure "all is well."


I miss you so much, Moomer.  I miss your company, the comfort your presence offered, the unconditional love you gave so freely.  You truly were the best, smartest, most loyal, loving, fun dog ever... and without you and your ears to cry on, I'm not sure how daddy and I would have gotten through some of the darkest days of our lives.  I still look for you in your favorite spot outside, in the dirt behind the avocado tree and when I don't find you there, my eyes habitually dart to the backdoor where you'd often wait... nose gently touching the glass.  Then I remember... you're busy running in circles with Chancy, chasing squirrels... and making nose prints in Heaven. 

Sunday, April 4, 2010

"Ears" Gone By...

Super corny post title... I know! I just couldn't help myself!

Here are some of our favorite Easter pictures from the last several years.
We are making new memories with dear friends today and we are wishing all of you a very Happy Easter!


2000
Sophie was such a good sport!



2003
In the NICU - - Gracie was 4 days old



2004







2005



2006
Also Gracie's 3rd Birthday





2007



2008





2009



Friday, February 5, 2010

Foto Friday 2, vol. 4

For Christmas 2005, John and I received the most beautiful gift from Gracie, courtesy of her nurse, Judy. Judy was Gracie's nurse from November 2004 through July 2008. She worked so many hours... gave so much of herself to Gracie and to us... and was (will always be) so much more to our family than "Gracie's nurse."

I have photographed her (their) priceless gift to share here with you. (The beauty of the message is easily seen despite the fact that my photo quality isn't great because it's pictures of a laminated picture book.) Suffice it to say that tears were plentiful when we opened this little book on Christmas Day 2005. Reading it today is no different. It still affects me just as much, if not more. The words, both in the beginning and within the book, are so beautiful.

The title page reads:
Dear Mommy and Daddy,
In this small book, you will find
photos of me as you see me in my normal,
everyday life. No touch-ups, fancy
clothes or hairdos, or special backgrounds - -
just me, naturally. And therein lies the magic!

My physical voice is presently silent, but my
spirit has always spoken loud and clear to all
who would listen - - and you have always listened.

So once again, please listen as my spirit tells you
what is in my heart and what I would have you know.
And in doing so, feel the magic of Christmas - - and me!

Love,

Gracie



































Thursday, January 28, 2010

Happiness is... remembering

On Monday, Preston got a haircut. (Gracie just had one four weeks ago, so isn't due yet.) His hair is short and should be just the right amount of surfer-boy shaggy by the time late spring rolls around! There's nothing like a fresh haircut to alter a child's appearance... and pull at this Mommy's heartstrings! It reminded me of the short cut he had last year, so I pulled up an older picture of him. The next thing I knew, I spent the better part of two hours steering down memory lane watching videos and looking at pictures of my "babies" - - and, when I do that, I feel this tiny (okay, huge) tug in my heart. While I thoroughly enjoy where they are in their respective developmental stages, in some ways, remembering makes me want to freeze time.

They both have changed so much, though, for obvious reasons, Preston's changes are far more noticeable on the surface and happen much faster than Gracie's. Their progress is miraculous, beautiful and, of course, very different. His changes come naturally and fairly easily while hers have months or years of patience, persistence and work behind them.

So, back to last night... I watched this video I made last January and realized I had tears in my eyes and an enormous lump in my throat. So much change and growth has occurred in twelve months; it's astounding. I am glad and grateful that I spend time (usually while up with Gracie) documenting things my kids do, uploading pictures & videos and gathering my thoughts about it all so that I can easily indulge my mamaheart and remember the littlest things with the simple click of a button.

(Things like exactly long it used to take Gracie to toss a ball, how she'd sweetly clap for herself, how much joy swinging gave & gives her.... what Preston looked like when he'd point to his body parts, how he loved swinging his sister, what he looked like when he signed "throw" to her and what he sounded like when he said "buh" while signing "bug." All of that has changed now, but because it's captured in this format, I actually do have little moments of them frozen in time.)

Wednesday, August 26, 2009

Pixie Stix - First session of Vital Stim

Several weeks ago, I scheduled Gracie's first appointment for Vital Stim and, as I was making it, I had a fleeting thought of, "That's the anniversary of her first open heart surgery." But it wasn't until the morning of the 25th that I realized there was a real irony in the date that she began this therapy.

The 25th of August, because it was the day of her first open heart surgery, represents a series of events that significantly detoured the path we'd been traveling with our daughter. In the weeks to come, she had four failed attempts at extubation (getting her off the ventilator), an episode of significant oxygen deprivation and repeated raised CO2 levels... all due to a very angry, floppy and, at the time, insurmountably compromised airway. Then came countless tests, procedures, the pacemaker, the trach and all that goes with it.

Her airway has since healed and, though there are structural anomalies within her airway, the reason she remains trached is her inability to swallow her own secretions. August 25, 2004 was the last day that Gracie had a functional swallow of any sort. Five years... to the day... she started Vital Stim. Though I remain cautiously optimistic, I would be lying if I didn't admit that I find great symbolism in this realization. I tried to tell myself that I shouldn't be more hopeful because of the significance of the date, but secretly I was (am). And as I wheeled Gracie into the reception room for outpatient therapy, I realized I was holding my breath.

I was so nervous. Nervous that she'd not even tolerate the electrodes on her neck. Nervous that it would be a negative experience for her and she'd not last the full time. I was nervous for Gracie because I know this is, at least as of today's therapies and medication intervention, our last chance at helping her rehab her swallow. Though I claim to be "cautiously optimistic," I guess my nerves proved that I am hoping beyond hope that something comes of this. My head knows it's a long shot - - and my heart believes in long shots.

As it turns out, my nerves regarding her tolerance of the therapy itself were all for naught. Gracie handled the first session beautifully. Her therapist was great with her and set-up slowly to give Gracie a chance to check it all out. She was curious about the electrodes and tape on her neck, but only gently touched them. As the therapist turned up the electric stim, Gracie would freeze a bit and get this look like, "What's that?" A couple of times, but only for a brief second, she grimaced as the intensity increased and the left side of her face twitched a bit. Best of all, (and guaranteed to make her want to go back again and again), she gets to taste things the whole time! She started with a lollipop (fitting, as we've affectionately called her "Lollie" for years!) and then progressed to a tongue depressor dipped in Orange Pixie Stix! She loved that! She signed "more" and "ready more" throughout the session.

During the three month trial, we will be watching for an improvement with the number of times she requires suctioning during a session (and later, at home), the amount of times she coughs and secretions come out her trach, her ability to swallow as we increase the "management" difficulty with the types of tastes she tries and she could possibly have a repeat swallow study. At the end of the three months, it will be determined how/whether to proceed.

And though the skies didn't part and Gracie didn't miraculously swallow everything in her mouth, she did have many audible and visual swallows during the session. One, in particular, was done with great timing and coordination in relation to her tasting of the Pixie Stix. Her therapist was completely impressed with her tolerance and was happy with the oral motor activity she saw along with the swallowing attempts during the stim. So, as I continually say regarding so many things with Miss Gracie, these are baby steps... but they are steps, indeed!