Thursday, September 30, 2010

'S' is for...

Sip



Sit

Last week, Gracie started requesting to sit in her red chair after school - - an indication that she's feeling stronger and wanting to pull herself up to stand, which, up until last week, she hadn't really done much of this since being discharged from the hospital.

'S' is also for silly toes... check out what Gracie's doing with her feet!

Signing Time

A favorite "wind-down" after school is watching a "Signing Time" DVD or her favorite signing episodes of "Blue's Clues."

Stand

Deja Vu!
On the left: February 2008
On the right: September 2010

They're both taller, especially Preston. They both have more hair, especially Gracie on the back of her head! And, they both are wearing fewer clothes!

Since Gracie started pulling herself to a stand and trying more physically last week, I called to set up an evaluation appointment to resume PT and OT services. We had the evaluation this week and will hopefully resume her twice weekly schedule in the next couple of weeks. Next, I'll work on getting her VitalStim resumed.

Sleep

After a birthday party last Saturday and what I fondly refer to as
"Bounce House Coma"

Gracie was out first (her eyes are open because she can't close them!) and Preston was only behind her by about five minutes!
And, yes, 'S' is also for strip... Gracie no longer wears a shirt in the car. If we put one on her, she will have it off in a flash! And, if she can't get it all the way off, she is hysterical until I pull over and help her. Thank goodness for my limo-tinted rear windows!!

Sunday, September 26, 2010

'S' is for... Sweet (mostly) things he says

More from the mouth of Preston...

Wednesday, August 11
While Gracie was in surgery, Preston told Nana he wanted to send mama a text. Using Nana's phone, he texted all kinds of gibberish with furiously fast thumbs. When Nana asked him to read it, he said, "Dear Jesus, my mommy."

Late that night, he asked to send another text that was so many characters it was multiple messages. Translated, it read, "Dear Jesus, I love you. From me, Jonah and Ella. (Jonah and Ella are twins and his good friends from school.)

Before Nana left for Georgia...
Preston went potty. Then Nana said she was going to go. He told her to go standing up like him. She explained that she can't go like that because she isn't a boy. He insisted, "Yes you can, Nana. I will show you how..." He has since also offered to help me do the same!

Monday, August 16
John and Preston walked in the front door and the mail had been dropped through the door mail slot and was lying all over the floor in the entryway. Preston picked up the mail and yelled, "Daddy I got mail. To Preston, I love you, from Jesus!"

August 23, 2010
Two days after Gracie was discharged, we set up the pools for the kids in the backyard and all four of us played... splashing, soaking and just hanging out. Gracie, Preston and I were in the bigger pool and John was getting ready to take a picture. Preston said, "We are a family again."
Sigh.

August 26, 2010
Preston and I were doing chores in the backyard. He saw a dandelion, picked it, blew it all over the place and went on his merry way. A moment later, I spotted another one (yes, we have a lot of weeds within our grass...) and pointed it out to him. He picked it and said, "I wish Gracie will feel better," and then blew it all over the place.
Be still my heart.

September 18, 2010
I could hear Preston laughing in the family room where he was playing and Gracie was watching her favorite signing episode of "Blue's Clues." I peeked over the counter to find him half sitting-half straddling her.
I said, "Preston, what are you doing?"
"I'm tooting on Gracie!" he giddily exclaimed.
"Preston, that's yucky... and you might hurt her."
To which he replied, "She likes it, Mama and I'm being careful."
And so the brotherly bodily function torture begins...

September 26, 2010
I took Preston to a birthday party... Gracie did not come with us. Preston was having a blast while I looked on, all the while feeling like I was missing a limb without my girl there to look after. Anyway, Preston slid down the giant slide, jumped down, and as he started to go back up the stairs, he suddenly turned around to me and said, "Wait, I have to go check Gracie." I had to remind him that she wasn't with us. (This was a good thing... as much as she loves bounce houses, she would have been trampled at this party as there wasn't a "calm" inch of bouncing space in the place!)

The day before we were at another birthday party at a different bounce house place and he periodically ran back to us to see that she, too, was having fun. "Checking her" means a variety of things for him... is she happy, does she need help, does she need to be cleaned up from coughing, does she have her diaper on, does she need a toy. I love that he loves her that much. I love that it is second nature to him to want to "check her." I love that he knows his sister is special and needs extra help and that he doesn't see her as anything other than his sister.

Saturday, September 25, 2010

'S' is for... School Bus

Gracie is riding the school bus again!


On Thursday afternoon, Gracie finally got her first school bus ride of the year. She was really happy (especially to see her bus aide, Kathryn), though I think a bit in shock! It has, afterall, been a long time since she's been on the bus. Between changes within the district regarding transportation, Gracie's multiple appointments, her overall health at the beginning of the school year and some issues with plain old logistics, I have been driving her.

She rode Thursday and Friday afternoon, which allowed us to work out some significant kinks (like they forgot the carseat and they put her on a bus without air conditioning, the later caused her to overheat and get sick Friday afternoon... grrr). Starting in October, she will ride in the afternoons four days a week and hopefully her mornings will be worked out soon... without any additional kinks!

Wednesday, September 22, 2010

'S' is for... Sun Hats and Space Ranger

Gracie is finally getting the hang of wearing a hat in the sun! The sunglasses, well, that's a different story. Usually, five minutes max!


My little Space Ranger loves helping Buzz Lightyear blast Zurg on the Toy Story ride at Disneyland. (So does his mommy... it's really fun!)
On the way home, he goes directly to, "Infinity and Beyond!"

Tuesday, September 21, 2010

'S' is for... Sing! (Glee!!!!!)

In honor of tonight's season premiere of Glee (as this mama is super excited for said premiere), I have put together a montage our resident show choir star!
He sings a lot and this video includes footage taken of him since March.
Enjoy our silly singer... it's showtime!

Monday, September 20, 2010

'S' is for... Story Time

From May... two kids, me, some stuffed friends and a pile of books all scrunched into a toddler bed!

It's hard to sign the books when we are squished up like that, but sometimes the most important thing is just being smushed together!

Sunday, September 19, 2010

'S' is for... Seal Beach National Night Out

This year's "National Night Out" was August 3rd. Since Gracie was admitted back to the hospital on the 2nd, our plans to attend as a family were obviously scrapped. It was an event that Preston was really excited about and we didn't want him to miss it. So, while I stayed with Miss Gracie in the ICU, John took Preston and met up with our friends, Dave and Danny, for a little "man time" at the pier.

So much to see!


'S' is also for... Super good buddies, Danny and Preston


A boys night out isn't complete without hot dogs, police cars
and, for John, handling a weapon!
Preston was being camera shy, but did like wearing that helmet!

Friday, September 17, 2010

'S' is for... Siblings

Taken on Labor Day after John set the kids on the roof of the car...

Gracie grabbed Preston's hand and was trying to get him to squish her cheeks and give her a bit of a face massage.


The more she squished, the more he laughed.


The more he laughed, the more she smiled.


Happy Boy


Happy Girl

Thursday, September 16, 2010

'S' is for... Stunts

'S' is also for...
"Somebody please stop him before he gives his mother a heart attack!"


Preston, who insists he's almost four despite having turned three in May, moves so fast and does such crazy stuff that, lately, I cut off his head in many of his pictures!

Wednesday, September 15, 2010

'S' is for... Slide



"I'm very careful and I don't need any help at all, thank you very much!"