Tuesday, January 12, 2010

Happiness is... giving yourself permission to have a less than perky day

On Monday, I woke-up grumpy. No real reason... just grumpy.
There were plenty of reasons to not be grumpy, after all, the slight fever Preston had Sunday morning was still gone, Gracie (after a rough last feeding of the evening Sunday) woke-up very happy and ready to start her day (at 3am... but happy!). We sat in her room, watching Signing Time, cuddling, giggling and catching up on some of our friends' blogs. Still, as the sun came up, I got grumpy.

I acknowledged my grumpiness to my dear husband and apologized in advance. I went through the motions of our rushed Monday morning with a little voice inside my head reminding me not to bark my answers to Preston's questions or John's, for that matter, as he was only trying to help with the Monday morning routine.
Knowing that it was my longest window of time I'd have all week, I had a list an arm's length of things I wanted to accomplish while Gracie was at school. But no matter how hard I tried, I was moving in slow motion. That just made me grumpier.

John said, "Why don't you go get your feet done?" which was entirely sweet as we have no business spending money on things like that right now. While I didn't go get a pedicure, his suggestion gave my brain the permission it needed to let go of my chore-list a bit and not put so much pressure on myself. Throughout the day, little things brought me bits of happiness and continued to help bring me out of my funk. By evening, I was fine. And, because the kids were both in bed early, John and I actually got to sit down on the couch together and watch some TV.

But today, the funk was back... like a little cloud hanging over my head as I walked around. And then, after talking with John about it, I realized that it's centered around Gracie's heart catheterization next week. It's not so much the procedure itself (although anesthesia is always nerve-rattling), but more about the fact that it's being done for to gain information for the fourth (and not last) open heart surgery that we know she's having at some point - - most likely sooner than later.

I dread the look in her eyes when she truly comprehends the fact that she's at the hospital. Most surgery and procedure days, she quite ironically has to be awoken from a peaceful sleep to get in the car. Even so, she tends to be in a really happy mood until she realizes what's happening. It's then that we get the look from her - - a look that tells us she feels we've betrayed her. It's awful and it scars my very core every single time.

I dread the waiting. I dread the pit in my stomach as I see the doctor approaching to tell us what our next steps are. I dread the process of her waking up from anesthesia. I dread the smells and the sounds of the hospital. And this time, I dread it because it's the first "big" procedure she's having done at our new hospital. We aren't with the nurses and intensivists who've known Gracie (and us) her whole life. And, as much as we've always dreaded going to the hospital, there was always a sense of comfort being surrounded by the people we've known for years.

In this "emotional preparation ritual" I go through, I also tend to analyze all she's been through. I wonder why she has to endure so much. I question so many things. I want answers as to why this diagnosis of CHARGE Syndrome and all that it entails has hit her so hard. When I'm not like "this," I lightly joke that when it comes to CHARGE, "Gracie's an overachiever." But when I am like "this," I want to know why she is so profoundly affected... or why is any child affected at all? I find myself asking questions that I know can't be answered.

I'm not trying to be melodramatic... just honest. She is not having open heart surgery next week. It's a routine outpatient procedure (though I've said it before, nothing feels "routine" when you're in the hospital with your child). Try as I might though, I can't turn all the questions and emotions off. I just have to let my mind and heart process it all so that I can move forward. I guess in some ways it's "nice" that I go through these emotions days before, so that the day of I can be a bit more rational and controlled in order to cope.

And, for the record, I wasn't grumpy all day. I was able, just like yesterday, to find little things throughout the day that made me a bit happier and lightened my load.
We ended the less than perky day by having friends over for dinner.
Taco Tuesday and good friends... definitely happy.

5 comments:

hannah m said...

Oh, my friend...I am so, so sorry you've had funky days. I am so, so glad you're giving yourself permission to sit with the funk - because sometimes that's what's got to be done - as icky as it can feel.

You're not being melodramatic, my friend...anyone who has experienced hospital life with his or her child understands there is nothing melodramatic about that. Hospital life is so difficult, so draining, so heartwrenching. It stirs up past experiences that our hearts might still be processing years later; it stirs the pot, so to speak, about the hows and whys...It takes us out of the context of our daily life which we've grown accustomed to and brings us back to the beginnings of our stories...and we don't always want to go there, do we?

My friend, I am sending you hugs and love. You guys have been on my mind extra-much in this anticipation-time. I wish I had the words to make it all better...

I will leave you with the song lyrics that always pop into my mind when I am wanting to comfort and feel at a loss (it's called "Comfort" by Deb Talan from the Weepies, of course :-)):

If you can't remember a better time
you can have mine, little one.
In days to come when your heart feels undone
may you always find an open hand
and take comfort wherever you can.

So cry, why not? we all do
then turn to one you love
and smile a smile that lights up all the room.
Follow your dreams in through every out-door
it seems that's what we're here for.


Oh, and yay for Taco Tuesday!

Crystal M. said...

I think we all have those days, one day we are joking and feeling they will get there in their time. Knowing what they can and can't do. Then we have our days where we just do not get it, it hits us like a ton of bricks. As you know I had mine last week with Eva and her communication and her therapists and teachers. Its never easy but we do it and we get past all the hard stuff.
I do agree I hate the hospital smells and sounds. Even when we just go in for a routine appointment. The 1st time you wash your hands and they smell like a hospital for the rest of the day....YUCK!!
I will keep you all in my thoughts and prayers when Gracie goes in next week.
Hugs,
Crystal and Eva

Leslie, Arlin and Katie Kauffman said...

I'll be keeping you and Gracie in my thoughts over these next few days leading up to her cath, Kristi. I know exactly how you feel--I have these "funk" days too, usually when something stressful is going on medically or educationally with Katie. I always hate that feeling, but yet I've learned over the years that I have to go through those stages of depression and grief over and over again in order to be able to clear my head, make the right decisions, and move on with a positive attitude.

Sending lots of hugs and positive energy your way...

The Claytons said...

I completely sympathize with you and understand exactly where you are coming from. I have had a few blah days here and there lately just waiting anxiously for Feb 2nd to come and go so that I can know when (may not find out again) Christopher's next heart surgery is. It is ok to feel the way you are feeling and I am sending hugs your way!

Love,

Kim

amy and mighty max said...

Funky days are just not fun...period. Thank you for sharing and being so honest. We love you and wish we could take away the funk...and hide it away somewhere for it never to return!

Much love, Amy and Max